One Little Boy's Four Years of Joy and Pain
Sheila Ahern Daily Herald

Community Responds in Big Way to Story of Little Boy
Sheila Ahern Daily Herald

CHILDREN WITH RARE DISORDER FIND HOPE AT CENTER IN SPRINGFIELD, ILL.
Tina Hesman The Post-Dispatch St. Louis Post-Dispatch (MO)

Family Matters (PDF download)
Karen Carlson Southern IL University Medical Publications